Understand Topical Steroid Withdrawal – Incredible Lessons LearnedMany people have never heard of Red Skin Syndrome. Steroid Rosacea, Perioral dermatitis, steroid rebound phenomenon and prednisohe more. The term "Red Skin Syndrome" was coined by Dr Marvin Rapaport MD, an American dematologist who has worked with many patients suffering from eczema and found that overuse of topical steroid creams can cause nasty side effects when withdrawn. Common symptoms include red skin syndrome from prednisone, burning skin when snydrome steroid cream is discontinued. In brassinosteroid mediated signaling pathway cases, overuse of potent steroid creams causes the skin to red skin syndrome from prednisone a cycle of addiction, with doctors prescribing more potent steroids to treat the worsening skin condition.
Red Skin Syndrome, Steroid Addiction : eczema
Many people have never heard of Red Skin Syndrome. Steroid Rosacea, Perioral dermatitis, steroid rebound phenomenon and many more. The term "Red Skin Syndrome" was coined by Dr Marvin Rapaport MD, an American dematologist who has worked with many patients suffering from eczema and found that overuse of topical steroid creams can cause nasty side effects when withdrawn.
Common symptoms include weeping, burning skin when a steroid cream is discontinued. In many cases, overuse of potent steroid creams causes the skin to enter a cycle of addiction, with doctors prescribing more potent steroids to treat the worsening skin condition. Steroid creams are an effective short term treatment for dermatitis, but prolonged use over a large body area can quickly spiral out of control. The more potent the cream, the more extreme the symptoms upon cessation.
The reason i am writing about this condition is because I myself am a sufferer. This is largely self inflicted.
What started as mild steroid use for childhood eczema grew over years to a habit that had me requesting repeat prescriptions every week for strong creams such as betnovate and using them on innappropriate areas such as my face.
By the time I realised what I was doing, the damage had already been done. Coming off the creams has been awful, similar to quitting drugs. As soon as I stopped using the creams, my skin burned violently and oozed clear fluid. I felt tired all the time. Studies by Dr Rapaport and Japanese dematologist Dr Mototsugu Fukaya MD have shown that recovery from steroid cream abuse can take between 6 months and 3 years depending on the length of use and potency of creams used.
The good news is that all patients improve after the withdrawal symptoms subside and their skin returns to normal. One well documented symptom of Red Skin Syndrome is skin redness that stops short of the wrist, ending in a white palm and hand, as I show in the picture. This symptom is common to all people who quit steroid creams. I have started my own blog documenting this condition at topicalsteroidwithdrawal. The blog charts my withdrawal over many months and I also post photos of myself during the process.
After 5 months, the improvement in my skin has been amazing. My journey of using steroid creams began in I had a flare up after reacting to chlorine while swimming and was prescribed betnovate C containing betamethasone 0. This worked a charm and my skin was clear in 3 days, but due to my bad judgement i continued to use it whenever I had a minor flare up. The flare ups became frequent each time so therefore I requested a repeat prescription from my doctor.
I continued using it for a year, i then started to notice that my skin was thinning badly and the veins underneath my skin had become very visible. In my disappointment I immediately stopped the treatment, a few days later I started to feel weak and fatigued possibly due to not tapering however my face became very warm and itchy so suddenly and the itchiness just became worse and worse and would not stop and the heat became unbearable so I decided to Google and book an appointment with my dermatologist.
After goggling I became aware of this weird disease that seemed so spooky and painful it was unbelievable that doctors are prescribing this drug continuously. The pain and discomfort were so unbearable that I had to take some time of work as I could not concentrate properly. After reading all the reviews, comments and having trued different things ice, benadryl, apple cider vinegar,oilutum, diprobase etc to ease the discomfort nothing was working and the warm weather made the condition worse.
So I decided I would go back and start using it until I could find a cure that worked. I then spoke to a dermatologist who was very alarmed to hear that my doctor had continued to prescribe me this strong potent cream and she immediately told me to start tapering it off instead of abruptly stopping to avoid messing up my adrenal gland.
However while I was still going through the steriod withdrawal my skin became a hot mess it seemed like my skin was trying to get rid of my old skin, the heat and itchiness reminded me of when I had a skin peel years ago the feeling was similar so I deduced that possibly the skin on the surface was so damaged by the cream that my body might have been trying to get rid of this skin.
I should also say that after reading about how some eczema suffers have reduced their symptoms by eating non gluten products I decided to change my diet as well and I no longer eat any bad gluten products, I now only eat whole grain organic foods no more bad foods for me.
As I had done peels before at home I decided to do it at home where I could monitor my own progress, 2 days after receiving my TCA peel iI finally did the at home peel, it was painful for the 3 - 4 minutes but after neutralizing I was fine I had done skin peels a few times several years ago. It took 8 days for the old burnt skin to completely peel off and new skin to come out. FYI with skin peels you have to allow the skin to peel naturally otherwise you scar and cause more irritation.
You can try any medium peel depending on your skin type but for me TCA is the best and its versatile - glycolic, lactic acid peel are less effective as they remove skin microscopically but TCA removes old skin off literally.
So after the revealing of the new skin I slathered the barrier cream and sunscreen and stayed away from sun or uv rays to not cause any damage to the new skin. I was very anxious, just waiting for the pain, heat and itching to start again but a day passed 2 days then 3 days then before i knew it was a week and now its been a month and half and have not had any symptoms. I only used the barrier cream for 3 days then stopped forgot so this is not really necessary but just in case you want to make sure you get the same results as me buy a good barrier cream that has lipids again I dont want to sell anyone's product so I recommend you do intense research online there are quite a few good barrier creams to chose from.
So i hope this will help someone out there who is suffering with this syndrome as it really worked for me. Words of wisdom - please be cautious with the skin peel this is an acid that is really dangerous and requires a lot of care - if doing at home skin peel buy one with full instructions from a reputable dealer who will take responsibility if you have any problems or questions.
Hope for the best for everyone with this syndrome and lets kee spreading the word and making people aware of these dangerous products,. Hi loopy-lou33 and shana Thanks so much for sharing, I've also looked through your difficult 18 month journey. I take my hat off to you as I just don't think I can do it cold turkey.
Which brings me to your post Shana29 and your potential solution by weaning for 5 months then applying a peel. I have suffered with this for around 5 years now and it has only been the last 6 months that I have actually given it a name.
I initially had a bit of eczema on my eyelids and in my search for a natural herbal non prescription cure I came across magicream, which I used merrily on my face since then. Thanks to this 'miracle' cure, I developed what I now know is perioral periocular dermatitis. Please do not use this cream as I now know that it contains dermovate - a very strong topical steroid! I find that protopic tacrolimus is useless for me, it makes my face feel like it's on fire and darkens and flakes the affected area and makes the rash worse.
I may try it again if I ever get on top of the rash to treat flare ups, but right now it is useless. A point of note that with almost all of the natural remedies, I have seen some calming effect in the first 3 days of use, but then the flare up begins.
The steroid withdrawal symptoms start after a few days so I think that is all that is happening and the remedies just aren't sufficient to counteract the effects. I also find that when I exercise I get a little flare up, also mid cycle so hormones obviously play a part here. I am now applying a tiny amount of magicream directly onto the blistered area once or twice per day for no more than 2 or 3 days at a time to get it under control and then going cold turkey until it flares up again in an effort to wean myself off.
I will then after a few months of weaning try a peel and hopefully this will do the trick. Hello, I'm a year-old college student and I have been using steroid cream for 4 years now. It was just barely this September when I stopped using steroid cream and started breaking out in these red-pimple-like-rash-look-alike.
I don't know what to do. I went to go see a doctor and he labeled it as acne and prescribed me Retin-A and Clindomycin. However, the alcohol in the Clindomycin was so strong that my face start having an allergic reaction.
I stopped using the medications altogether and don't know what to use anymore. This week I started using the steroid cream again What should I do when I stop using the steroid cream and my symptoms come back?
My doctor prescribed me metronidazle but will it work for this? I have felt so depress, I don't want to socialize anymore and have a hard time studying for my exams. I have been using steroid creams for at least 5yrs and I was concerned about the long term effects so i decided to stop. As soon as i did it was like my face exploded! I spent the summer with my sister researching natural cures.
Sadly we have to go through this painful stage of the red itchy weepy skin before it can start to heal. However we did find two things that will be very helpful. This helps stop the itchiness and over a few days will stop the weeping.
Over a few weeks the redness should subside too. Is a skin care cream specifically designed for Perioral Dermatits. Now i haven't tried this myself, i have though ordered some and it is on its way. It is a water based gel and cream that comes with a specific soap that helps soothe the Perioral Dermatitis. I wish you all the best and hope these help. And a word of advice, STOP using the steroid creams.
TRUST me i was like you and continued to use them as i didn't want to look like a monster in front of others and i chose to sit in my room instead of socialise but continuing to use the creams will only make things worse. I have Protopic Withdrwal red skin leathery oozing bumps on my forehead its a bloody mess, I was using this protopic garbage for 2 months for insect bites , I do not have Eczema. I have stopped using protopic cold turkey as this protopic fixes your skin problem you stop you get withdrawals , so will not touch protopic or any topical or steriod cream again.
Also taking echinacea capsules. Will be going to doctor for antibiotics as I am sure my skin is infected. Hi, I'm the father of a Red Skin Syndrome child. The story is the same, over and over. Our son had eczema as a baby and that's where it all started. The creams prescribed would work for a bit, then a higher powered one would be ordered when the skin wouldn't clear. Allergy tests were performed often and would show he was allergic to most everything.
We now know that was because his skin was inflamed and sensitive to everything. We tried every home remedy you could imagine and nothing helped. Through research we found Dr. Rapaport in Beverly Hills. We flew out there from Florida and spent 5 days and 3 visits. It was there that we learned there isn't much you can do but just stay off the steroids and let your body fight it out.
We are approaching a year after his last steroid cream and we are finally in the home stretch. We were teased on several occasions into thinking he was healing, but then another flare up would occur.