Dyshidrotic Eczema sharing my experiencePosted 29 December at I developed DE around Feb Although I've always had mild eczema my whole life. I would get some spots here and there on sterojds hands, which would usually clear up. My problems with DE started to appear as my regular eczema, but I noticed this time Topical steroids for dyshidrotic eczema would get blisters and fluid building up.
Dyshidrotic Eczema sharing my experience | Dermatitis And Eczema | Patient
Posted 29 December at I developed DE around Feb Although I've always had mild eczema my whole life. I would get some spots here and there on my hands, which would usually clear up. My problems with DE started to appear as my regular eczema, but I noticed this time I would get blisters and fluid building up. It started on my palms then spread pretty much throughout all my hands. To make a long story short, 6 months later there was no improvement, all my fingers and palms were inflammed, cracked and weeping.
At that time my derma was prescribing me a topical steroid cream and ointment. This did not work. At this point he put me on 5mg of prednisone oral steroid and a faster absorbing oil based steroid cream.
Fast forward 3 months and my hands are all cleared up. But this come at a cost. When while on and tapering off the Prednisone, I developed facial acne and folliculitis. Which I am still battling til this day. I've been off Prednisone now for a month and its side effects are starting to go away. So what I have learned so far from my treatment is, the combination of the Prednisone and the oil based topical steroid worked but at a cost.
If I had to do it again I would not have gone on Prednisone, its side effects and coming off the drug does to much to your hormones adrenal glands that its not worth it, although in times of desperation you are willing to try anything to get DE cured. Other things I have worked for me that may be helpful to others, stop popping blisters and stop picking or peeling your skin. For me, popping it made my condition worse. I've read that popping blisters makes it spread even more, i did not believe this, but it appears true for me.
Also, stress and sleep has a big thing for me. Stress is hard to control, but when I'm stressed it makes my condition worse, the irony is the reason i get stressed is more because of DE, so how to you reduce your stress!
Hope this helps anyone out there by sharing my experience. My condition at this moment is in remission. I know DE is not curable but at this point its manageable.
Right now I'm still using topical steroids twice a day to keep it from flaring up. But really I think I can cut this down to once a day.
Also for the past six months my derma has had me wash my hands with oatmeal soap and use a milk based moisturizer. Heavy creams, loitions or ointment seem to make my condition worse. Was interesting to read what youve said. Ive only been suffering since Nov with this on my hands and feet. It has been driving me insane with the itching and I read about popping the blisters would help the itching.
Although that worked it actually spread it worse, so a viscious circle. All the heavy creams the gp prescribed seemed to make it worse to. I have been using fusidic acid for a couple of days now and the improvement is immense. Apart from that I am trying normal E45 cream now.
Will give the oatmeal soap a go to. Hi, I totally sympathise with you , I also have DE pompholyx eczema I had huge blisters on my hands and feet and was hospitalised for 2 days due to the risk of infection. I was put on 40mg of prednisone and have just come off steroids after 4 months. My DE is also caused by stress and I'm trying to find some more natural remedies rather than having to take steroids again side effects were vile I'm using steroid cream at the moment but it doesn't seem to be doing much.
You're totally right, the stress of having the eczema causes more stress, it's a vicious circle! Hi Mark - can sure relate as I too have this.
On right palm and 2 fingers. Usually flares up every winter for last 10 years - for whatever reason flared up especially bad this past winter. Will not take oral steroids again took them 12 years ago for a painful thyroid problem however as you say there is a cost to that. Won't go into it here. Twice this past winter my hand got infected and had to go on antibiotics.
Last prescription about 4 weeks ago and seemed to help the DE a bit. For the itch and to soften skin do Emu oil absorbs I put boiling water in a bowl then place affected hand over the bowl and place dish towel over hand and bowl and keep there for 15 min. When itching is totally out of control I have put baking soda or apple cider vinegar in water as hot as I can stand it and soak hand. It'll sting a bit but far better than itching and it does take itch away for about 24 hours. However this doesn't help heal - just control itch.
I also wear a cotton glove most of the day and night. In last 4 weeks slowly started to see improvement. However I normally see improvement every summer as weather warms up and I am able to let the sun shine on my hands.
Sure wish I could live someplace warm all year round as I think this would be my answer for keeping this horrible problem at bay. I am new in this site. Been on here for cataracts but thought I check here too for anyone else's suggestions for DE. Hi, was just reading your reply. Have you never considered getting a small medical grade UV-B lamp?
You could use it twice a week for say 5 min or so to ameliorate your skin disorder during the winter months. Rthanks DanR - my mom has one of those lamps. I perhaps should look into that. I have had my bouts with skin cancer so I always weigh benefit to those lamps or sun with risk of more skin cancer. This winter - just starting all is good for moment.
Hoping this year predicting milder temps will be better. I keep with emu oil and now have gotten into essential oils and using those too. Fingers crossed no pun intended this will be a better winter. Headed to a sunny destination for a bit this year too so hopefully that helps. Saw my family doctor not long ago and she thinks the more severe flare ups due to menopause years too - affects the skin apparently.
Also thinking this has something to do with my early onset of cataracts. Hi Mark and co. I too was diagnosed with DE about 18 months ago and went to see a dermatologist privately who prescribed Prednisalone following a biopsy confirming eczema. Yes it worked but then when I stopped it after 12 weeks, I suffered big time on hands, legs and lips. I joined a Facebook group which promotes no steroid use as apparently it causes worsening eczema.
I am now over a year without steroids and find that by protecting my hands e. A recent spell in hospital which saw me on antibiotic drip also caused a huge flare up but that has now disappeared.
I would say avoid steroids if you can and use emollient creams etc when a flare occurs. So glad to have met someone who suffered the same dermatitis as me. I had my first experience with DE almost two years ago but i've had atopic dermatitis all over my body ever since I was a month old but have never thought of reaching out to the community. My DE were all over my palms and soles and perhaps caused a long lasting atopic dermatitis on my palms and soles now.
You're totally right about the stress cycle! I had the same oral steroid being prescribed to me and it worked like a charm but that charm only lasting for a week or so. The side effect i received was weight gain from the medication but i'm fortunate enough that that is the only effect it had. The steroids furthermore were very short termed as my eczema was on full-flare the weeks after.
Sometimes I think that i'll live to my adult life suffering from this and that scares me. It's financially draining and emotionally taking its toll on me. But i'm trying to find natural remedies such as the use of ACV and coconut oil as well as aloe vera; hopefully that and a change of diet should help me!
Please wish me luck and I hope your eczema also clears away! I've been suffering from pompholyx on the sole of my left foot for nearly 5 months now. Her actual words my question in return was how bad do I need to get?? Not being able to walk at all??!!
She said i was in for the long haul, it will take along time to clear up! I feel for anyone who has this, it's not nice. Hi - I suffer from atopic eczema on my hands. One thing that has helped me with the itch is to get a pan of boiling water with a teaspoon or two of sea salt in it then I place my hand just over the pan with a tea towel over it like a tent. Leave for minimum of 10 mins. Itch goes away and leaves my pores open to apply moisture.
I have been using Emu oil.